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Tyler wasn’t willing to give up one single moment of his childhood to this deadly disease. It was not unusual to find him playing and racing around his backyard, veja ??? wearing his medicine-laden backpack and dragging his tank of oxygen behind him in his little wagon.veja  All of us who knew Tyler marveled at his pure joy in being alive and the energy it gave him. veja Tyler’s mom often teased him by telling him that he moved so fast she needed to dress him in red. That way,veja  when she peered through the window to check on him playing in the yard, she could quickly spot him.